Hemophilia Association of New York (HANY)
HANY is a consumer organization formed to assist individuals with hemophilia and other bleeding disorders by providing direct assistance, peer meetings, education and advocacy. The organization, through grants, also helps to fund research to help find a cure for hemophilia and other bleeding disorders. Service areas include: New York, Kings, Queens, Richmond, Bronx, Nassau, Suffolk, Dutchess, Orange, Putnam, Rockland, Sullivan, Ulster, and Westchester Counties.
Contact Information:
Hemophilia Association of New York
131 West 33rd Street
Suite 11D
New York, NY 10001
Phone: 212-682-5510
Fax: 212-983-1114
View HANY Events:
Hemophilia Federation of America (HFA)
Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.
Contact Information:
Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
Toll Free: 800.230.9797
Phone: 202.675.6984
Fax: 202.675.6983
National Hemophilia Foundation (NHF)
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
Contact Information:
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
View state and national legislative advocacy content
New York State Bleeding Disorders Coalition (NYSBDC)
The New York State Bleeding Disorders Coalition is a partnership of not-for-profit organizations dedicated to public advocacy on behalf of people affected by bleeding disorders in New York State.
The Coalition includes patient-consumer community organizations and hemophilia treatment centers serving New York State and several regional/national bleeding disorders education and advocacy organizations. Together, these organizations provide a broad range of medical care, education and support services to people affected by bleeding disorders.
Contact Information:
Phone: (315) 396-2944
E-Mail: info@nysbdcoalition.org
World Federation of Hemophilia (WFH)
For 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.
Contact Information:
1425, boul. René-Lévesque O.
Bureau 1010
Montréal, Québec
H3G 1T7 Canada
Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: wfh@wfh.org
Foundation for Women & Girls with Blood Disorders (FWGBD)
The Foundation is dedicated to raising awareness and education of key healthcare providers at each life stage of women and young girls with blood disorders. The foundation also translates and disseminates provider information and research.
Consumer Resources:
Emergency Kit Checklist (NHF)
National Hemophilia Foundation Publications